My listener...my pharmaceutical alternative

I think of Mom often, every day.  I especially think of her when I'm stuck in a moment where I need her and where I'd usually reach for my phone and give her a call.  Mom always listened to me.  She was the best listener.  It didn't matter if it was morning, noon, or night; if she was at work or baking a pie, she always set aside time to give me her full attention.  For the past four months I've been calling "home" to talk like I did with Mom, but I don't get the fulfillment.  No offense to my sister, Elisabeth or Dad, but Mom was simply better at listening to me, at listening to Anne.  To top it off, she was also the best at knowing how to respond to me, to respond to Anne.  I guess I've always been a little "special"...the baby of the family, the black sheep, the over-reactor, the emotional one, the one that really needs to voice things, the one that let's everyone/everything get to me, the one that has a hard time shaking things off and letting things go...  My worst traits are quite the pain in life as they can hold me back and get me into trouble and be hurtful not just to me, but to those I love; trust me, if I could turn them off, I would.  While I haven't figured out how to just simply be "normal," I have recognized these short fallings and I did figure out, for the most part, how to minimize the negative impacts.  My answer to helping me in a situation was, 1) keep my mouth shut in a position and at that moment and wait until after #2 2) talk it out with Mom.  Mom had all my answers, or maybe I had all my answers, but Mom helped me find them.  While I kept a few secrets from Mom, like the party upstairs while her and Dad were home...those small things were truly nothing, Mom knew me the best.  Without Mom, I've been lost because I've been stuck at #1 w/no #2.  A good friend of mine rescued me a couple times and I'm grateful to her.  I even posted on Facebook once (this is a no-no according to Mom, but I thought that I handled it okay).  I suppose I could pay someone to listen to me....do they work via phone on my way home from work?  Who has time to talk any other way?

Well, so far the only solution that I've found is to become more like my Mom herself.  While it was natural for Mom, I've been practicing patients (deep breathing, situational meditation) and thankfully I have an amazing husband that is in love with me and does a great job listening when I just need to get it out.  Mostly, I'm practicing that life is as it is, one of those final lessons that Mom was able to teach me.  Mom's life was as it was, cancer.  Life as it is and take care of it with care.  Have I lost you?  In my own words:  1) Do not surrender  2) Do not spaz  3) Make an educated decision  4) It's not everyone's business (working on #4)  5) Act accordingly  ...these are (some of) the things that I witnessed my Mom do in life and that I have made as my goal.  My 2-step plan was much more desirable and I prefer the benefits of it's #2, but if I just pouted about it and didn't figure out how to adjust then I'd be failing #1 of the new plan.

I feel like I'm going through withdrawal of my "medication," emotional ups and downs, times of being hopeful, times of failure, but I do plan to succeed.  I can succeed because my Mom, my listener, my pharmaceutical alternative is still with me, has still taught me, and has helped me find the answer within myself to deal with my own faults.  She will always be with me, will always teach me, and will never stop helping me.  Thank you, Mom.

Mashed Potatoes and Gravy...

In the last few weeks I've been reminded of Mom.  I made a Sunday dinner with mashed potatoes and gravy.  The gravy is Mom's recipe.  The first bite I had, I closed my eyes and for the moment I was at her dining room table and she was behind me in her kitchen dishing up her own plate.  It was so real.  The flashback was like in the movie Ratatouille when Anton Ego takes his first bite and the scene takes us to his childhood with his mother in the kitchen.

Gwenyth and I had a date night together and she chose to eat at Red Lobster.  The last time we were there was when Mom was sick, but before hospice.  I looked back at the booth where we all sat.  I wanted to be in that moment again, I wanted to see her sitting across from me again.

Today I took the kids to the Ordway Theater in St. Paul to watch The Saint Paul Chamber Orchestra.  The last time I was there was when we (Mom, Dad, Bernadette, Elisabeth, and myself) walked through a huge snow storm to go watch "Joseph and the Amazing Technicolor Dreamcoat."  Mom and Dad thought that they were going to be going on their own, a gift from us.  My sisters flew into Minnesota and we surprised them the night before the show.  That was the last time that all 5 of us were together before Mom was diagnosed.  I looked at where we sat in the theater and again, I wanted to be in that moment with Mom.  I wanted to be at the hotel with my sisters giggling before we surprised them, at the pub eating dinner, and back at the show enjoying one of our favorite musicals together.

While my memories make me wish that I could go back in time, I remember the message at Mom's service.  Mom isn't gone...her spirit and her love lives here forever.  I know that her spirit and love lives on because I feel it every day.  It's the physical that's missing.  The song that Mom chose for her "celebration" was "This World Is Not My Home" (see lyrics below) which was another lesson from my Mom.  Mom passed through and we don't belong here, physically, forever.  We all are passing through and one day will be together again.  While I can wish that I could go back to those moments, living on with everything that Mom has left and leaving behind our presence and love is what we are supposed to do as we pass through this world.  Myself and everyone who eats my cooking certainly can enjoy Mom's love in my mashed potatoes and gravy...correction, Mom's mashed potatoes and gravy.  And when I have these memories, these moments of going back in time in my mind, I will smile and welcome them.  I never want them to end as long as I am in this world, this world that lingers of Mom's love everywhere.

This World Is Not My Home

This world is not my home I'm just passing through my treasures are laid up somewhere beyond the blue the angels beckon me from Heaven's open door and I can't feel at home in this world anymoreO Lord you know I have no friend like you if Heaven's not my home then Lord what will I do? the angels beckon me from Heaven's open door and I can't feel at home in this world anymore They're all expecting me and that's one thing I know my savior pardoned me and now I onward go I know He'll take me through though I am weak and poor and I can't feel at home in this world anymoreO Lord you know I have no friend like you if Heaven's not my home then Lord what will I do? the angels beckon me from Heaven's open door and I can't feel at home in this world anymore Just up in Glory Land we'll live eternally the Saints on every hand are shouting victory their song of sweetest praise drifts back from Heaven's shore and I can't feel at home in this world anymoreO Lord you know I have no friend like you if Heaven's not my home then Lord what will I do? the angels beckon me from Heaven's open door and I can't feel at home in this world anymore

Never Forget

I started writing out of anger in July and well, I was angry at someone else who wrote out of anger (as well as a little inherited insanity) I didn't want negativity to drive me....so I figured that it would be better to step back and take a few breaths before continuing.  I'm back now.  Excited to share what's in my mind...what's in my heart.

It feels like my mind is stuck.  It's stuck on those last weeks, days, hours, breaths.  I have so many happy memories of Mom and yet I've been stuck on thinking about the end.  I think perhaps that since those moments were so precious, that I'm afraid that I'll forget them and so I continue to run them through my mind over and over and over.  I promised to take you on a journey.  I don't want to ever forget this path and I want my mind to be free to remember the better days and so I'm ready to take you on that journey.

Weekend #1 May 4th, 5th, and 6th.

hos·pice  (hsps)

n.

1. A shelter or lodging for travelers, pilgrims, foundlings, or the destitute, especially one maintained by a monastic order.

2. A program that provides palliative care and attends to the emotional and spiritual needs of terminally ill patients at an inpatient facility or at the patient's home.

---

[French, from Old French, from Latin hospitium, hospitality, from hospes, hospit-, host; see ghos-ti- in Indo-European roots.]

(from www.thefreedictionary.com)

Chemo wasn't working anymore and Mom had been feeling pretty yucky for a few weeks.  This was the first weekend that I headed up north to visit Mom after she chose to stop her chemo care and hospice was brought into the home.  Nobody knew how long this would last, this...hospice.  We didn't know how it all worked and nobody could tell us because as it turns out, there are no textbooks that the weak body has to follow as it nears it's departure from this physical Earth.  This is similar to what I tell my patients in my line of work that every pregnancy is different and that the fetus doesn't have a set of rules that it follows.  The human body has it's own individual way of entering and exiting...

Mom was sleepy, but just about the same as she had been.  The weekend was kind of typical, kids running around 'n' all.  Our conversations were different in topic where we talked about how we wanted to prepare for what was to come.  There's a little book given to families when their loved one enters hospice and there are lists and suggestions of things to prepare so that we don't have to do it all last minute.  But Mom was the same as the last time I saw her.....do we have to start this now???  We hadn't talked like this at all, remember, because it wasn't what Mom wished so it was kind of uncomfortable at first and I almost felt like I was a little kid doing something wrong.  I remember that the countertop was full of new meds, quite a few of them.  All of those orange bottles were kind of scary...yup, I was scared for her.  I was scared for me, for Elisabeth, for Bernadette, for Dad, for Mom.

The whole weekend I was wondering when I was going to break the silence about "it" to Mom.  It had been over a year and now and here I find myself preparing the strength and the bravery to go ahead and say so many things to her that I had been wanting to say since Bernadette called me that Spring day.

(I answered the phone and Bernadette asked me where Gwenyth was and if I could move to a room where she wasn't.  I was hoping that it was about a fun secret, a surprise even, I was very curious and told Bernadette that it was fine, just tell me.  Then what she said next is quite foggy in my mind...it wasn't much more than Mom, doctor, and medical imaging and I was screaming "No No No! Mommy!" as I fell to the floor in tears.  I was mad, I was sad, I was scared all at once over and over again.)

Friday and Saturday had passed, it was Sunday and I still hadn't spoke a word of what was going on with Mom's body to Mom herself.  I was so nervous at how she was going to respond.  Would she be mad at me?  Would she cry?  I had to do it, though...what if this is my only chance?  I packed up the car, the kids were fed and we were ready to hit the road.  It was the first time, but wasn't going to be the last time that I was scared to leave and I dragged out my farewell for quite some time, stalling our departure.  I waited until I was giving hugs and kisses 'bye for the weekend and for the first time since her diagnosis, I cried in front of Mom.  "Oh sweetie," Mom said, I can still hear her voice in my head.  Well, silly me for being so scared and unsure...she responded just as Mom always responded when I cried over anything and that's with a warm hug, love, and support.  I sat with her in her bed and she hugged me as I cried on her shoulder. She said that she was a little scared too, but that everything would be okay.  She gave me a good Mom-lesson talk.  These are the talks that she gave to me as I was growing up and as an adult.  Sometimes I welcomed them and sometimes I didn't want to hear it...this one I was very grateful for.  She told me that I have a beautiful family and to live healthy, to teach good habits to the kids.  Sheesh, I thought, this is a tough way to teach me and my family this lesson.  I wished it wasn't so.

Tears fell for a bit and finally, I had the nerve to speak up myself and I told my Mom the most important message that I had for her; I told her that it doesn't matter to me what made her sick, I love her always, with all of my heart, no matter what, I love her always.  I had quite a bit more to my message than just those words; that I was sorry about her diagnosis, that I didn't want her to feel guilty or embarrassed, that I respect her and that I wish that I could take care of her as she's taken care of me.......it didn't go as smoothly as I had envisioned in my head all weekend, but I got the most important part out.  It was the best feeling in the world to let my Mom know how much I loved her and that although it had been an emotional rollercoaster, through it all and when it comes down to it, I did not judge her, I only loved her.

If it sounds like I'm bragging about how I handled that Sunday afternoon, I am.  To let go of judgement and to just love feels absolutely amazing...I feel free, like a soaring bird.  I'm also bragging that my Mom was awesome in that moment.  She was scared, she was sad, and she still upheld her title as Mom.

So we took off that day.  I did it and I loved her more.  

The need to write...

June 2012 was quite the month.  I had the most unbelievable wedding and it was so beautiful and I'm so in love with my husband.  Everything went perfectly.  I'm so excited to move forward in my marriage and for our family to continue to grow (that's not a hint that we're expecting, we're not).  I'm just excited for our today and for our future.

Every single day, though, I remember and think of my Mom.  June 7, 2012 which was my Grandmother's birthday, Mom passed.  She danced away wearing red in my dream just moments before.  I miss my Mommy so much.  It's been since her funeral that I've cried a good cry...until right now.  I look at her picture every day....I call the house so that I can hear her voice on the voicemail.  And she was truly the best.  I hadn't blogged about Mom's illness because I was respecting her wishes and the way that she chose to fight her battle.  Mom was diagnosed with small cell lung cancer in March or April of 2011.  The cancer had metastasized to other organs and Mom chose to treat the cancer with chemotherapy, which was her only option.  She also chose to battle the illness with a positive attitude, some would call it denial, but it was something else so much more, it was a something that I don't know if I can describe, but Mom taught it to me from that Spring until the very last day this June.  You see, I thought that we should have talked more openly about the cancer, but we hardly, if ever, spoke a word of it.  Mom taught me that life is more enjoyable when you can go to the grocery store in your hometown and live life as usual, that life is more enjoyable when you celebrate holidays in the moment and as usual, that life is more enjoyable when we go fishing, out to eat, to a concert, and live life w/out negativity.  That's how she did it and she had doctor appointments on certain days of the week, sure......but her time outside of the doctor was happiness and life that she continued to live.  ...and live she did!!  She fought the battle and survived for over a year to see Rory be born and to see Arthur be born and to help me dress shop for my wedding and to travel to Germany and to make many more pies and many more spaghetti dinners and I love her even more for that.  My Mom was the best woman in my life.

I've experienced losing someone before, Grandparents, friends, special pets...but nobody so close.  It pretty much ...sucks.  In the most crappiest moment in life, my Mom pulled through for me.  No matter where she was in her journey to heaven, she pulled through for me.  As a person's health deteriorates, they change.  My Mom went through those changes.  I visited every weekend and I had 3-day weekends so it was nice.  Each visit was different.  My visits and moments with my Mom are all a blessing in each their own.  I am going to share my journey in my upcoming blogs.  For me, for you, and mostly for my Mom.  I love and miss my Mom with all of my heart.  I wish that my next visit home, I'd see her like always..........I wish...............

My heart is broken and yet so full.  This is how it feels.

January, February, March!

Oh my, where does the time go???  I should probably blog more often to be considered an actual blogger.  There have been so many things going on and I've been so busy with planning.......OUR WEDDING!  We are so excited.  Less than 3 months away, June 16th is when the big day will be.  I'm so excited to have a ton of fun, dance, and for a super special day all in celebration of the love between me and Justin.  Oh my gosh how exciting is this??!!!  ...and at the same time it's kinda weird to think that after 32 years (not 32 yet, but soon) I'll be changing my last name, I'm going to be a new family member to all of Justin's aunts and uncles and cousins....and he will be a new family member to mine.  I'll be.....gulp....married.  For quite a long time I was so okay with being single then our years together I was good with this companionship where we co-lived, yet we were individuals.  And soon, we'll be so much more, we'll be one!  Is it always this much of a rush of feelings?  The excitement, the anxiety, the rush of love, the nervousness, the experience, the awkwardness, the freaking out in hopes that it'll be perfect, I love it all......I love the crazy feelings, the fluttering in my heart, the certainty of it all and most of all, I love Justin so much!  Ahhhhh, so pumped!

Who knew that planning a wedding meant that there's not a day that goes by that you don't think of it until the day of.  On top of all of that thinking...life still goes on.  My job is going good.  It's not perfect, but is there any perfect job?  I love what I do, there's no denying that, I just wish that I could deliver it my way vs the assembly line way.......touché.  There's been a change (for the good) that my schedule is changing to four 10s and I'll have every Friday off.  A 3-day weekend every weekend, save money on daycare, save money on gas, but my most favorite part...and extra day with my Rory and Gwenyth!

Rory and Gwenyth.  Rory isn't the type of infant that gets around by rolling across the floor from point A to point B like Gwenyth did.  He does get his way around, though...he spins around and pushes and pulls.  It's fun to watch him grow...and grow he is doing!  He eats 3 meals a day plus his milkies, he talks and talks, he observes and explores and he LOVES LOVES LOVES his sister!  Gwenyth is the most amazing big sister that Rory could ever wish for.  She plays with him and she makes him laugh, she'll even change a diaper (she thinks it's fun).  Gwenyth is also doing amazing in school.  For "I Love to Read" month she won 2 parts of a competition that they had in school which was the girl that read the most books and the girl with the most points (for the quizzes that they take after reading).  She was glowing when she came home with her awards.  Not even a week later she came home with another award for being Star Student in the 2nd grade for PhyEd.  I love seeing her succeed, it's the best feeling in the world to see your child happy.

So we've been busy, we've been good.  In the past 3 months, there have been times of laughter, tears, frustration, joy....just as any family may go through.  And here's to future months of changes and planning and successes to report (next time not 3 months later).

Christmas

It was a lovely holiday season for the Steele-Buhl family.  First we had a Justin Birthday/Christmas dinner with Justin's Mom and step-Dad, Sister and her hubby, and Brother here in Woodbury.  It was a nice evening out and the kids were spoiled and loved up by John and Jean with wonderful books and toys and goodies that both the kids love.

Christmas Eve we had Justin to ourselves, he bribed a local high school kid to take over his shift.  So we geared up and drove up north to spend the day/evening with my parents and my sister and her kids.  We had our traditional Swedish dinner with Aunt Diane and Uncle Tom, Cousin Nico and Maya and Matthew.  Justin tried lutefisk for his first........and maybe only time and he also learned how to play the card game, "May I".

Christmas morning Santa had come, we celebrated Jesus' Birthday at church then packed back up and traveled to St. Cloud to enjoy Christmas day with Justin's Dad and his side of the family.

Rory danced around the Christmas tree in his Daddy's arms and with Great Grandma by their side.  Her Danish family tradition.  The kids had a great time.

We loved having the chance to see all of our family and it was a great 1st Christmas for Rory with lots of memories saved in pictures.